Monday, April 23, 2012

My patient experience: how we can become better physicians because of it.

What Makes a Good Physician
1.       Sit with patients at their bedside. When I was first hospitalized with acute pancreatitis during my freshman year of college, I appreciated that my physician sat at my bedside, because it showed he cared and had enough time to make me a priority. It seems like a small gesture, but it makes a big difference. In contrast, I roomed with this sweet elderly woman named Wilma, and her doctor would stand at the foot of her bed.  This made him seem distant and disengaged, and the contrast between our physicians was noticeable and left an impression on me.

2.       Recognize that medical decisions can be really difficult for patients, and give them time and space to make these tough choices. Even though you might have a strong opinion about what to do for a patient, realize that some decisions have big implications.  And some decisions do not have clear answers.  The patient is the one who will ultimately have to live with the decision. My surgery was the hardest decision of my life, because there were so many factors to consider and the data is limited.  The stakes were high with waiting until my pancreas got more damaged or doing the surgery immediately. Both decisions carried a risk for chronic pain and diabetes. I got conflicting opinions from pancreatic experts which made the decision even harder.

I had a physician friend suggest that I ask my surgeon, “If I was your daughter, what would you do?”  I was hesitant to ask this, because I feel like we have been taught to let patients be autonomous and make their own decisions. I decided to ask my surgeon anyway. He took some time to think about it and ended up saying that he would recommend the surgery sooner rather than later while I still had functioning islets and was going into this relatively healthy. I really appreciated that my surgeon did not say, “I can’t answer that. You have to make the decision for yourself.” I knew I was the one who was responsible for my own decision, but I needed help in making such a major judgment call. My surgeon was the one who had witnessed the outcomes of 100+ patients post-surgery and knew what individual factors contributed to their complications and recovery.  All I knew was the limited amount of data that had been published and the conflicting opinions I was hearing.  I trusted my surgeon though, and I wanted to factor his honest judgment into my decision.  After answering my question, my surgeon acknowledged how difficult the decision was for me and told me to take as much time as I needed. He also told me that it is important to have comfort and peace about a big medical decision before committing to it.

3.       Celebrate the little successes with patients. If they able to void for the first time without a catheter, celebrate! If they get out of bed and walk to the chair, celebrate! These little things are actually a big deal.

4.       Encourage optimism. I think there is a way to be honest with patients while still providing hope. My surgeon would call the few complications I had during recovery “speed bumps” instead of setbacks. This implied that I was still moving forward in my recovery, but these speed bumps forced me to slow down every once and awhile. My physician’s optimism was contagious, and my family and I remained optimistic that I would have a successful recovery. Honestly, I believe attitude plays a huge role in how patients heal and recover.

5.       Collaborate with the nurses. My nurses were my advocates on the floor, because they spent so much time with me and really became familiar with the ups and downs in my recovery. They are so valuable and should never be taken for granted!

6.       Ask patients if they have questions.  I really appreciated this from my doctors. They also acted like all my questions were valid, although in hindsight, I probably asked some stupid ones. (On my first hospital admission with pancreatitis in college, I asked the ED doctor what lipase does.) I also think it is important to give patients time to think if they have questions or encourage them to write questions down.

7.       Provide some comedic relief (or at least try). It helps lighten the mood, so the patient forgets about their own situation for a minute!

8.       Build a relationship. Especially if you see a patient for an extended period of time, become their friend and ally. I had the best chief resident here in the hospital, and I actually looked forward to getting woken up on rounds each morning, because this resident was so friendly and caring. She let me into her life as well, and I learned about her life as a surgical resident, her upcoming wedding plans, and her new dog. My friendship with her made me realize the importance of a strong doctor-patient relationship. And yes, this goes for surgeons too!

A Physician That Needs Extra Coaching…
1.       Does not listen. This has happened multiple times along my journey with pancreatitis, but one particular incident stands out. When I was in the emergency department for my 4th hospitalization of acute pancreatitis, the physician insisted that I get a CT scan. I tried to explain to him that I just had a CT scan a month before in Minnesota (now I was at a different hospital in Missouri), and those results were normal. I was not interested in getting unnecessary radiation and wanted to discuss this further with the gastroenterologist on the ward since I would be admitted anyway. The physician walked out of the room and instead of offering any sort of explanation, he sent the nurse in to give me oral contrast for the CT scan. I ended up getting the scan, and later the gastroenterologist said that it probably was not necessary. I really wish I would have been more vocal in that situation or just had the physician listen to me in the first place.

2.       Assumes the patient knows more than they do. This may have been because I was a medical student, but I had several people assume I knew how to count carbohydrates, give myself insulin injections, etc. I had one physician start talking about hypokalemic metabolic alkalosis in detail which went completely over my head. That stuff is confusing for anyone, let alone someone who is sedated from narcotics.

3.       Does not greet or explain their role to the patient. I had a large care team at the University of Minnesota which was great, but there were so many people who came in and out of my room that it got confusing after a while. Some people assumed I remembered them after our first encounter, but it was hard to keep everyone straight especially because I have no recollection of my first few days in the hospital. I think it is helpful to introduce yourself to a patient for the first few encounters to make sure they understand who you are and why you are there.

4.       Jokes about when a patient will be discharged from the hospital. Please never say to a patient, “you might be able to go home in a day… or three,” and then start laughing. Patients get quite sensitive about getting discharged from the hospital.

5.       Acts disinterested in the patient or acts like they are an inconvenience. I was readmitted into the hospital for dehydration and had a medical student process my readmission. I am sure he had an incredibly long day of surgery, and it was obvious that he did not want to be there. I did not want to be there either but at least tried to be friendly!

6.       Stereotypes patients based on their medical condition.  I know we learn the most common presentations of diseases, and our cases highlight that. But please remember that patients rarely present that clearly and are a complete whole person that needs to be considered. Please try not to stereotype patients based on what (may or may not have) caused their health problem or what medications they are taking.

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